There is an urgent need for our organizations support and programs. . Arent you supposed to be helping people on the autism spectrum? Keith and his wife, Anne, are parents of two adult children, one of whom has autism. Keith Wargo joined Autism Speaks as president and CEO in October 2021. When typing in this field, a list of search results will appear and be automatically updated as you type. I may be quiet on the outside but I have genius on the inside. Kelli served as the Chief Development Officer of the United Service Organizations (USO) from 2008 to 2014, where she led fundraising efforts to support America's servicemen and women. To read the IRS Form 990 (2016), click here. He was central to the 2008 passage of the World Autism Awareness Day resolution at the United Nations and subsequently led the development of the Global Autism Public Health (GAPH) initiative that provides technical support to country governments to enhance autism awareness, advocacy, research and services worldwide. Emailus. Autism is a complicated phenomenon. It cuts those parents off from new information, our autistic perspective. He assumed the role of senior vice president of advocacy in 2018 and leads Autism Speaks advocacy efforts. Autistic people know how to help Autistic people, Kelly Green writes. Companies Related to Autism Speaks Companies in the same industry as Autism Speaks, ranked by salary. Mr. Wargos appointment is effective October 15, 2021, and follows the Board of Directors announcement earlier this year that Angela Timashenka Geiger would be stepping down from her position after a five-year tenure. This well-researched article exposes the illusion of what Autism Speaks is really about Their concept appears to have come from good intentions, yet we all know the old adage, The road to hell is paved with good intentions. Other words of wisdom are more appropriate here: Hell is full of good meanings, but heaven is full of good works.. Probably the two most common misconceptions about Autism Speaks are people who walk are walking for autism supports in their own community and autistic people benefit from the majority of money raised. In 2013 Autism Speaks spent $120 million as follows: In addition to the above, Autism Speaks spends about a million a year in lobbying activities for autism insurance reform and raising federal funding for genetic and biomedical research and services for autistic people. Enter your email address to subscribe to this blog and receive notifications of new posts by email. They exploit and use Autism as a means to garner sympathy and donations from family and friends . 26. People with autism and the family and friends who stand alongside them are . . Yes Debbie, indeed, its time to turn the mirror back around! The $21.5 million was used to compensate 263 individuals which equates to $82,000 each although 49 individuals received more than $100,000 in compensation. Thats a huge plus in my opinion. If the primary goal is to make money, that strategy is effective. Tax forms have shown that Autism Speaks spends a significantly low amount of its funds on actually providing resources for and aiding those with autism and their families. Autism Speaks is an accredited BBB Wise charity see why they meet the standards of charity accountability. Under Dr. Shihs leadership, Autism Speaks supports ministries, government agencies and leading nongovernmental organizations in more than 70 countries to deliver better outcomes and quality of life for tens of millions of individuals and families. Mr. Wargo joins Autism Speaks after a long and successful career in finance on Wall Street. With responsibility for the Autism Speaks Walk, TeamUp and other peer-to-peer and special events, Jennifer leads the largest revenue operation of the organization. The organizations original mission statement, Autistic Self Advocacy Network (ASAN) reported that, Judy Blume Clarifies That She's Pro-Trans Rights, Says 'Sunday Times' Quoted Her Out of Context, Artist Hellbent on 'Ruining' Popular Songs Accidentally Makes a Bop From Miley Cyrus Remix, Not All Scenes Need Sex To Be Sexy and This Viral Tweet Just Proved It, Rather Than Responding To Criticism, David Choe Is Filing DMCA Takedowns of Videos Calling Himself a Successful Rapist, Succession Just Showed Us Who Is (and Always Has Been) the Next Logan Roy, Audience Reactions to Beau Is Afraid Are as Surreal as the Movie Itself. In addition to centering its focus on finding a cure for autism, Autism Speaks has also explicitly contributed to the stigma and discrimination surrounding autism by purposefully painting it as something to be feared. Autism Speaks took in more than $69 million last year, over $600,000 of which was paid to a single executive, recently released tax filings indicate. What Is Going On With Rebecca on Ted Lasso? Finally, Autism Speaks top executives make over $600,000 annually. Mr. Wargo and his wife are parents of two adult children, one of whom has autism. #LIUB alternate is #Walkinred; #AutismSpeaks -#BoycottAutismSpeaks. In 2016, Autism Speaks spent $21.5 million on compensation-related expenses and $10 million on fees for services outside the organization. 15.6 % [13] The organization was established with a $25 million donation from The Home Depotfounder Bernie Marcus, who sat on its board of directors for some years. Others didnt want to participate in the discussion because they called it political. One thing is clear, some are afraid of Autism Speaks and their power. Theyve written a couple articles on Grant about his autism and how his quirky behavior turned into a business So far it has been a good experience for us, Julie Coy, parent. To find resources, join an event or make a donation, go to www.AutismSpeaks.org. About four percent of Autism Speaks funding goes to Family Service grants. Over the course of his long and successful tenure, he developed a proven track record of building effective teams, partnering with an array of stakeholders to tackle complex issues and helping to grow and scale multifaceted businesses across multiple industry sectors. When they with so much give little. Mr. The CDC released a new report that shows an increase in autism prevalence with 1 in 36 children diagnosed with autism spectrum disorder in 2020, and. Ive never seen so many of the people an organization claims to support speak out against it as much as this one. Small organizations filing a Form 990N "e-Postcard" are not included in this data. Aydanos a proteger Glassdoor verificando que eres una persona real. About 1 in 6 children with autism have been asked to leave a child care or preschool setting, new research finds, and the experience has long-lasting consequences. 8.6 % $25k-40k. Autism Speaks spent over $52 million on advertising. Budget allocations and marketing effort doesnt pass the smell test. The Disability Law Center Avg. spreads a horrible view of autism. Meanwhile, a large portion of their funds also goes towards research. My entire family is autistic. We are an international collaboration of talented individuals who have come together to display the creative abilities of people on the autism spectrum and others who are neurodivergent. There is also some skepticism about what happens to all the money Autism Speaks receives. Get the inside scoop on jobs, salaries, top office locations, and CEO insights. om ons te informeren over dit probleem. does it really educate about autism?I believe in personal encounters, I believe in talking and explaining my autism to others, I believe in finding things we all have in common rather than looking for differences. Dr. Shih has held various leadership roles in the organization throughout his tenure including senior vice president of public health and inclusion. pour nous faire part du problme. A twitter chat between Autism Speaks and Toys R Us about toys for differently-abled children raised ire among disability advocates. Autism Speaks grew quickly as it merged with three other pre-existing Autism organizations including Autism Coalition for Research and Education, National Alliance for Autism Research, and Cure Autism Now. Prior to that, she was a divisional controller at Springer Science and Business Media, where she worked for 13 years and began her career in finance and technology. More recently, Mr. Wargo became an owner of Monarch Cypress, an industry-leading amenity manufacturer and supplier, where one of the company's missions is to employ autistic individuals. The Internal Revenue Service is substantially delayed in processing and releasing nonprofit filings, so documents available here may not be the most recent an organization has filed. Prior to joining Autism Speaks, Joe was the Chief Operating Officer at United Way of Metro Chicago. As a parent of an adult son on the spectrum, he also understands the diverse needs of the autism community and the importance of providing a variety of options and solutions to best support the people we serve. Eugenics is eugenics, Tina Richardson, I have no way to make my feelings known about the awful negative myths and fear- mongering, advertising campaigns about autistic people they use to gain dollars for their main goal, short-sighted eugenics goals, whilst silencing protest with a few small strategically timed handouts, Stephy Tihanyi, Our pieces are not missing and we are not puzzles. Contrary to what was portrayed in the media, he didnt consider himself an employee or spokesperson for the organization. Brian Kelly didnt mention partnering with the autistic community. They do so much harm and the 4% of good things they do is totally overshadowed by the 96% of things they do that make our lives so much worse, Lei Wiley-Mdske. responsible for the science portfolio, including grantmaking, the MSSNG genomic research project and the Autism Care Network. Kelli Seely joined Autism Speaks as Chief Marketing Officer in May 2022. We will partner with community organizations, businesses, educators, and researchers across the country to foster innovation that will improve the lives and futures of people across the autism spectrum, Brian Kelly, new chairman of the board. Something certainly doesnt seem to add up when 20% of your budget goes towards fundraising, but as little as 1% goes towards actual charitable activities and funding. Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. The estimated total pay for a Director at Autism Speaks is $144,979 per year. The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. Numbers dont lie. To find resources, join an event or make a donation, go towww.AutismSpeaks.org. Stuart holds a Juris Doctor degree from the University of Wisconsin School of Law and a Masters of Laws in Taxation from the New York University School of Law. Autism Speaks might sound appealing to individuals and families seeking to raise awareness or receive support. Bitte helfen Sie uns, Glassdoor zu schtzen, indem Sie besttigen, dass Sie No and Ive never been, though Ive tried not to talk too much about it. Glassdoor has salaries, wages, tips, bonuses, and hourly pay based upon employee reports and estimates. Environmental, Social and Governance (ESG), HVAC (Heating, Ventilation and Air-Conditioning), Machine Tools, Metalworking and Metallurgy, Aboriginal, First Nations & Native American. The Art of Autism. When I found out how many autistic people were against it, I stopped supporting it and turned my attention to local organizations like Autism Tree Project Foundation that I can personally see making a difference in peoples lives, Alex Tescher. They just need to be gently educated about the problems with Autism Speaks and guided toward raising money for better organizations, like the Autism Self-Advocacy Network, AANE, and local groups, Steve Silberman, I think the best thing we can do for others is to bring attention to the issues with Autism Speaks and provide a rational concrete explanation for why they are not the best choice. However, he recalled his role being greatly limited and regulated to merely making recommendations. Specifically, he leads strategy and high-level management of all financial activities, information technology, human resources, data base administration, donations processing, facility management, legal, risk and compliance. 45.3 % $40k-60k. The video was removed after backlash and Autism Speaks claims it is not part of their current message and campaigns. The Art of Autism recently declined to participate in an event in Los Angeles where a person from Autism Speaks was being honored. Charitynavigator.com rates Autism Speaks a low 3 and a 2 for their financials (on a scale of 1 4). If you continue to see this Finally, Autism Speaks is often criticized because of how money they raise is spent. Additionally, those from the autism community who did gain administrative roles in the company didnt come away with good things to say about it. We seek diverse viewpoints including those from autistic people, parents, siblings, therapists, and others. Mr. Wargo's appointment is effective October 15, 2021, and follows the Board of Directors . Reports have suggested as little as 14% of their annual budget goes towards providing Family Services and their provision of family grants. Keith Wargo Appointed President and CEO of Autism Speaks. President, Chief Executive Officer and Trustee, RPT Realty. The move also allowed Dawson to take a position at University of North Carolina at Chapel Hill. If you want to do an in-depth view please ask those who are raising a severe child/adultHigh functioning autistics wear it like a badge of honor great good for them, have pride in who you are, but those on the severe side that have to wear head gear to prevent skull fractures from banging their head, unable to communicate, cant function independently and are living a life day to day trapped in a body they cant control is NOT the same. Liz Becker, parent. Business Based on 55 salaries Director 13 salaries Manager 11 salaries View More Product & Project Management Based on 14 salaries Senior Coordinator 5 salaries Coordinator While they stopped trying to cure autism, theyve instead switched to trying to prevent those with autism from being born. Im certain at board meetings, AS board members discuss what media messages will raise the most money. Instead, their money goes towards harmful research and back into the CEO's pockets. Organizations making less than $50,000 dont have to file either form but do have to let the IRS theyre still in business via a Form 990N "e-Postcard.". Kathleen Tehrani, founder of Autism Brainstorm, On one hand, I know that AS is the ONLY presence for awareness in many foreign countries. Currently Toys R Us is a target of boycott with the hashtag #Toys4All. I asked the President of Autism Speaks to respond, but received no reply. This number represents the median, which is the midpoint of the ranges from our proprietary Total Pay Estimate model and based on salaries collected from our users. With a focus on advocacy and support for individuals and families affected by autism, Autism Speaks spends about $45 out of every $100 on compensation related expenses. Rachel Ulatowski is a Freelance Writer, blogger, and aspiring author. One parent called them the new bully on the block. I told them my son is a struggling artist why dont you buy it from him? All rights reserved. In its early years, the organization was researching a cure for autism. They went on to explain Dawsons cross-country moving expenses by saying that her presence on the east coast makes her more accessible to Autism Speaks offices, three of its science divisions and government health agencies in Washington, D.C. We strive to raise public awareness about autism and its effects on individuals, families and society: and we work to bring hope to all who deal with the hardships of this disorder. For me the overriding message of this article is ASs over-emphasis on spreading their concept of what autism is. Many members of the autism community describe autism as a part of who they are and have reiterated the sentiment of wanting to be accepted, not cured. There was turnover in the organization with four of the above staff departing the organization. Keith brings a unique and diverse background to Autism Speaks with nearly 30 years of business building experience at leading global financial institutions including Goldman Sachs, Deutsche Bank, BMO Capital Markets and Mizuho Securities. In this world, access to information and resources is a universal right, untethered to geographical or societal boundaries. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly. So the local charity needed the money and Autism $peaks doesnt (for neurotypicals who dont get it, misspelling of Speaks deliberate). Lamentamos pelo inconveniente. Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. Si vous continuez voir ce Not what makes the parent comfortable. The Art of Autism, 855 S. Main Ave., Ste K. #313, Fallbrook, CA 92028, 10 replies on Autistic people, parents and advocates speak about Autism Speaks, My adventures with the Autism Speaks Resource Directory or how I wasted my entire morning, Grassroots advocacy: Matt Asner joins Autism Society of America, Autism Speaks revamps its Mission Statement, Autism Speaks and now, after 10 years, so do I, Stephen Shore talks about his appointment to the Autism Speaks Board of Directors, A Woman to Be Reckoned With: The Controversial Legacy of Suzanne Wright, Poet Erin Clemens on front page of Daily News. The IRS Form 990 is an annual information return that most organizations claiming federal tax-exempt status must file yearly. Joe provides leadership across all support functions of the organization with an aim for workplace excellence and an outstanding level of integrity and compliance. 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